Gastrointestinal tract

In some forms of EB formation of blisters of the mucous membranes of the mouth and esophagus can occur.

This causes various problems, the most common are pain and difficulty swallowing.
Furthermore, it can also lead to reflux (rising up of acid from gastric contents into the esophagus). The intestinal tract may also be involved, which then for example can lead to constipation.
We especially recommend in this chapter to read only the section that pertains to the EB-form, which you or your loved one is affected by. As this section is the only one really relevant for you.

Important points in a nutshell

In some forms of EB not only the skin but also the mucous membranes of the gastrointestinal tract is affected by blistering.
The most common symptoms are: pain in the mouth and esophagus, dysphagia, constipation, reflux, and failure to thrive.
In the chapter on "diet" you will find useful information on this topic.

Downloads

Gastrointestinal tract EBS generalized intermediate
pdf - 172 KB
Gastrointestinal tract EBS generalized severe
pdf - 170 KB
Gastrointestinal tract EBS localized
pdf - 151 KB
Gastrointestinal tract EBS with Pyloric atresia
pdf - 161 KB
Gastrointestinal tractfor dominant dystrophic EB
pdf - 162 KB
Gastrointestinal tract RDEB, generalized severe
pdf - 167 KB
Gastrointestinal tract RDEB, generalized intermediate
pdf - 145 KB
Gastrointestinal tract JEB generalized intermediate
pdf - 153 KB
Gastrointestinal tract JEB generalized severe
pdf - 153 KB
Gastrointestinal tract JEB with Pyloric atresia
pdf - 161 KB
Gastrointestinal tract Kindler Syndrome
pdf - 160 KB